Online support for endometrial stromal sarcoma

Someone commented on links for online support for endometrial stromal sarcoma. There were two links only, and I have examined them.

The first is

http://health.groups.yahoo.com/group/Endometrialstromalsarcoma/

and is Yahoo group devoted to the topic. The membership has to be approved, which is only normal considering the delicate position these women are in. If they approve me, I'll tell you more about what is inside, and what other resources are in there to help the patients with this catastrophic condition.

The other link is

http://www.acor.org/

but once over there, they say:

Please Note: On January 17, 2007 ACOR experienced a catastrophic hardware failure. Most of the site is currently unavailable as a result.

so there isn't much to be seen.

I'll keep you posted on this. In the meantime, if you know other online resources for gynecological problems, especially those possibly leading to hysterectomy, please add them by commenting on this blog.

The original page for endometrial stromal sarcoma on my site www.how-to-avoid-hysterectomy.com is

http://www.how-to-avoid-hysterectomy.com/uterine-sarcoma.html